I’m often asked about the European Health Data Space (EHDS), so I thought I would put together a brief primer on the regulation. For more information or additional resources please feel free to get in touch.
STS Italia 2025: Politechnico di Milano
STA Italia’s 10th Annual Conference “Technoscience for Good: Designing, Caring and Reconfiguring” will be held June 11 - 13 2025 at at Politecnico di Milano. Consider submitting to our open panel Designing Worlds, Worlding Design: The Ethics and Politics of Value Creation in Digital Health and Health Data Integration.
4S / EASST Joint Conference in Amsterdam: Making Data Markets
This July the quadrennial joint meeting of the European Association for the Study of Science and Technology (EASST) and the Society for Social Studies of Science (4S) will take place in Amsterdam. I will be presenting Making data markets: the value of assetization and the assetization of values in a digital health start-up.
Data Justice Conference 2023
I’ll be at the 2023 Data Justice Conference in Cardiff, Wales, where I will present “Institutional Ethnography & Data Justice: Concepts, Tensions, Practical Applications”
AIES 2021: Co-design and Ethical Artificial Intelligence for Health – Myths and Misconceptions
I’m presenting Co-design and Ethical Artificial Intelligence for Health: Myths and Misconceptions at AIES 2021.
Richard Whitby's The Lost Ones at SALT
This month I had the chance to visit Salt Galata, a contemporary art space occupying a former bank building in the Karaköy district of Istanbul. This work by Richard Whitby titled The Lost Ones was on, showing residency status assessments being carried out by an unforgiving, disembodied voice.
Through dark humour, it highlights the casual violence of bureaucratic processes that increasingly reduce complex lived realities data points and scores, and abstractions of eligibility, compliance, and risk, making visible how technical processes of classification are bound up with questions of belonging and exclusion, highlighting the politics of datafication and its impact on everyday life.
Moving Patient Engagement to the Centre of Health Care
To improve the health care system, we need to think bigger about the role of patient engagement. Engagement must be embedded in daily practice.
I wrote this op-ed for the Institute for Research on Public Policy's July issue of Policy Options.
How Librarians are Rising to Their Next Challenge: The Opioid Crisis
Libraries are among our most accessible public spaces. In this Toronto Star article, a strategic partnership between Toronto Public Library and Toronto Public Health highlights how moving care into the community improves access to critical services.
Co-Design For Health: From Inclusion To Equity
What exactly is co-design, what does ‘involvement’ really entail, and which projects are best-suited to co-design? Through a brief overview of co-design for health, I, along with Pivot Design Group team members Ian Chalmers and Pam Sethi, set out to provide an answer to these questions and more.
Will AI Just Wind up Automating Inequality?
Will AI automate inequality? An IRPP podcast on how can we ensure that digital innovations don't create a “digital poorhouse.”