Project Title

Co-design as a method of patient and public involvement in health care improvement and innovation: a meta-narrative review

About the Project

This research project is being carried out as part of my Master’s thesis at the Institute of Health Policy, Management and Evaluation at the University of Toronto.

It will explore co-design as a method of patient and public involvement in health care improvement and innovation. Specifically, it will aim to illuminate some of the underlying assumptions about the value of co-design (e.g. economic/political-social/ethical beliefs and priorities), and how those different assumptions about its value can contribute to different goals and implementation practices across various health and care settings.

The Team

Joseph Donia, BA
Jay Shaw, PT, PhD
Alex Jadad, MD, PhD
Paula Rowland, PhD
Marina Englesakis, MLIS

The Methodology

This study will follow a meta-narrative review approach. Meta-narrative review is often used where a topic crosses many different disciplines or research traditions. By synthesizing, comparing, and contrasting findings from different research traditions, an overarching narrative can then be developed which illuminates the topic from a variety of perspectives.

The Goal

By illuminating how co-design is deployed in health system improvement and innovation, this study will identify opportunities and challenges associated with co-design, and in particular, will enable health care decision-makers and patients alike to make more informed choices about when and how patients, caregivers, and publics should be involved in co-design projects.

Project Status

This project is currently in the search stage.

Call for Literature Sources

As part of the search phase of this project I am contacting researchers and practitioners working in patient and public engagement, quality improvement, health design, health technology, and health innovation, among others.

Journal articles, reports, case studies, and other grey literature relating to co-design with patients/caregivers/families/publics for improvement or innovation in health or health care would be appreciated.

This research study adopts a narrower focus on co-design, compared to related terms such as co-production or co-creation. Experience-based design and co-design more broadly will both be considered.

If you have any sources which you feel would be relevant to the review, or if you know any colleagues who do, please feel free to contact me at: